Available Supplies
Children with Cockayne Syndrome and Trichothiodystrophy require a plethora of supplies to ensure their sympotoms are minimized so they can maximize their life experience.
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Below is a variety of the supplies we send to families.
Summer Items
UV protective sunglasses
Sun protective shirts
Sunblock (zinc-based only)
Sun canopy
Stroller/wheelchair shade
Sun umbrellas
Portable fan
Sun hats
Cooler
Ice packs (for cooler)
Cooling pads
Sunsuit (long-sleeve bathing suit)
Vision and Auditory Items
Eye patches
Hearing aid batteries
Hearing aid clips
Eyewear retainers
Winter Items
Winter boots
Heating blanket
Trapper hat
Sunblock
UV protective sunglasses
Mittens
Snow pants
Merino wool socks
Bunting bag for stroller/wheelchair
Weather shield for stroller/wheelchair
Incontinence Items
Diapers
Wipes (sensitive skin)
Incontinence pads
Diaper rash cream
Waterproof bed liner
Weighted blanket
Gastroenterology and Nutrition
Stoma powder
Gastrostomy pads
Blenders (for pureed diet)
Pureed food storage containers
Adaptive spoon and fork
Suction plates/bowls
Adaptive cups
Adaptive popsicle and pop holders
Wedge pillow for GERD
Tube feed backpack
Skin and Hair Products
sulfur-8
Honest spray conditioner
J&J body wash/shampoo
Neutrogena sunblock
hand sanitizer
Aveeno sensitive skin lotion
Aquaphor
disinfecting wipes
water wipes
Baby oil
urea lotion
A&D ointment
